Preemie Proud was envisioned after the birth of my only daughter who is now seven. She is our true "Miracle Baby." Being born at 29 weeks (11 wks early) and weighing in at just over 2 lbs, our daughter remained in the NICU for almost 7 weeks. As many of you are finding out, preemie clothes found in general retail stores do not fit a micro (petite) preemie and do not accommodate medical needs. My husband and I were in the same situation. No one in our area sold items other than "up to 7lbs" clothing.
With my husband returning to work, I spent most of each day and night at the hospital keeping watch, reporting in to family & friends, and praying she would be alright. Each day had trials and triumphs. However, this left no time for searching for baby apparel online, so we ended up using handmade items given to us after her birth and tiny baby doll clothes (12") for her first clothes. Our NICU required they be flame retardant and that was even harder to find. We do not recommend that you do this due to the safety issues involved.
Upon starting this store, I found out that micro-preemie clothes were very rare (if found at all) six years ago. Even if I had the opportunity to look for them, I probably would not have found them. However, manufactures are beginning to see a need for these tiny clothes and they are available online through stores like Preemie Proud.
I have been greatly blessed with a wonderful daughter. She has caught up with her peers in size, has no known mental, speech or language delays, and continues to flourish each day. We are truly thankful and we are "Preemie Proud."
Best of luck with your new "early" arrival.